My sIBM ©MJH

My sIBM Experiences ©MJH 2020-2025 sIBM Atrophy

(Content modified: February, 2026)

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Michael J. Hannah, Los Ranchos, NM.

My Experiences with sIBM

I was diagnosed in December 2016 with Sporadic Inclusion Body Myositis (sIBM). This rare condition, recognized by the Muscular Dystrophy Association, causes a steady and progressive atrophy of the muscles, generally starting in the quadriceps and forearms. There is no known cause, cure, or treatment, although there is some evidence that appropriate exercise seems to slow down the rate of decline in some patients. I believe such exercise has been beneficial to me.

As I cope with this condition I expect to continue to post pages on a variety of topics which are related to sIBM. The following are only a few, but I hope they are of interest to other sufferers of this terribly debilitating degenerative muscular condition.

Equipment to cope with sIBM

• The Drive™ Nitro rollator for sIBM (Content modifed: October, 2025)

(For non-exercise walking and other uses)

I have had a very portable Drive™ Nitro rollator since October 2018 for non-exercise walking and other uses when I am out and about in town. I have found it very helpful not only as an easily portable walking aid, but especially as a transportable raised height chair, and even as a tea trolley.

• The Alinker® as a rollator for sIBM (Content modifed: July, 2023)

(Why I customized it and use it for exercise walking)

I have had an Alinker™ R-volution walking bike since July 2020 which I customized to use as a rollator. This web page is my explanation of why I felt it necessary to slightly modify this bike due to my specific sIBM medical condition, and my experiences of walking with it for exercise nearly every day since then.

• The LifeGlider® as a standing aid for sIBM (Content modifed: November, 2025)

(For use around the house)

I have had a LifeGlider walking aid since August 2025. This web page describes my experiences of using it around the house when I would be standing for some time.

Disclaimer

These documents are strictly my personal comments about my experiences related to my sIBM condition. I do not warrant in any way that their information and opinions are accurate or useful, and any use of them is at the user’s own risk.

As described in a separate document, these documents were composed with Adobe® Framemaker 2019®, converted using its hyperlink and "Save as HTML" features, post-processed with my custom Perl© script, linked to my Responsive CSS file which references my fixed set of fonts, and the HTML and CSS are W3C validated.